We are increasingly exposed to the impact of climate change, air quality degradation and emerging diseases. The number of people affected by respiratory conditions is growing significantly, yet resources to meet their care needs continue to decline.
In this sense, research plays a fundamental role in connecting the actors in the healthcare system, providing quality, science-based information for decision-making, and promoting new knowledge for a healthy, prosperous and more equitable global society.
“The 5th Ibero-American Summit discusses the current challenges facing research and the significant lack of investment for respiratory diseases.”
Shane Fitch, President, Lovexair Foundation
Program
Day 1 : Tuesday, December 5
Inaugural session
15:30 – 16:00 hs (CET)
The map of respiratory health research Where are we and where are we going?
Shane Fitch
,Lovexair Foundation- Dr. Francisco García Río, president of SEPAR (Spanish Society of Pneumology and Thoracic Surgery).
- Dr. Francisco Arancibia, president of ALAT (Latin American Thoracic Association).
Discussion table 1
4:00 p.m. – 5:00 p.m. (CET)
Research from the
academic-scientific perspective
- Alfonso Aguarón,
policy officer at Lung Cancer Europe [Moderator]
- Dr. María Molina
scientific director of the Respiratory Diseases Area of CIBERES (Spain)
- Dr. Tomás Chivato
dean of the Faculty of Medicine of the CEU San Pablo University (Spain)
- Dr. Justino Regalado
president of INER- National Institute of Respiratory Diseases (Mexico)
- Kevin O’Brien
Senior Medical Director of IQVIA (USA)
Panel discussion 2
17:00 – 18:00 hs (CET)
Research from the care perspective
- Dayana Lago, psychologist and patient with Cystic Fibrosis [Moderadora]
- Dr. Juan Carlos López, President of GRAP- Grupo Respiratorio de Atención Primaria (Spain)
- Dr. Joan Soriano, epidemiologist, Pneumology Department, Hospital La Princesa (Spain).
- Dr. Anahí YáñezMedical Director of InaER Investigación en Alergia y Enfermedades Respiratorias (Argentina).
- Dr. Esther Barreiro, pneumologist and researcher Hospital del Mar-IMIMIM (Spain)
Discussion table 3
18:00 – 19:00 hs (CET)
Research from the
industry perspective
- Dr. Nicole Hass
, APEPOC spokesperson and technical advisor [Moderator]
- Dr. Amelia Martin Uranga
director of the Department.
Clinical and translational research at Farmaindustria (Spain)
- Dr. Susana Baldini
medical director of CAEME – Argentine Chamber of Medicinal Specialties (Argentina)
- Silvia Caño Alcaina
Senior Project Director for Scientific and Clinical Innovations AstraZeneca (Spain)
Day 2 | Wednesday, December 6
Panel discussion 4
15:00 – 16:00 hs (CET)
The research of the future
- Dina Grajales, Fundación Ayúdanos a Respirar (Colombia) [Moderadora]
- Dr. Beatriz Martínez, research scientist IIER-Instituto de Investigación de Enfermedades Raras (Spain)
- Prof. Adrián LLerena MD PhD, Director INUBE University Institute of Biosanitary Research of Extremadura (Spain)
- Carlos Jaime, Managing Director France & Iberia Ascom (Spain-Portugal)
Panel discussion 5
16:00 – 17:00 hs (CET)
Research from the perspective of patients and family members
- Andoni Lorenzo, President of the FEP-Spanish Patients’ Forum [Moderador]
- Bernard Gaspar, president of the Spanish Association of Lung Cancer Patients (AEACaP) (Spain).
- Juan Carrión, President of the Spanish Federation of Rare Diseases (FEDER).
and founding member of the Iberoamerican Alliance for Rare Diseases (ALIBER). - Sabrina Brignardello, Global Head of Recruitment Department, Un ensayo para mí (Argentina)
- Jennifer MacDonald, Lovexair Foundation ambassador and Alpha-1 patient (Mexico)
Workshop
17:00 – 18:00 hs (CET)
Redefining the map of priorities in respiratory health research in Iberoamerica
- Online and live workshop with attendees and participants to address various issues and reach consensus on priorities from the point of view of the different stakeholders. This activity will be moderated by a facilitator who will apply interactive dynamics.
- Participation is open to anyone interested in contributing their vision on how to improve and promote research in respiratory health.
Closing session
18:00 – 18:30 hs (CET)
Keys to boosting research
- Dimitris Kontopidis, CF patient and newly elected president of ELF – European Lung Foundation
- Jose Roberto Jardim, Professor of Pneumology at the Federal University of Sao Paulo (Brazil).
- Shane Fitch, Chairman, Lovexair Foundation
The event will have simultaneous translation (Spanish-Portuguese).
Speakers
Dr. Francisco García
President of SEPAR (Spanish Society of Pneumology and Thoracic Surgery).
Dr. Francisco Arancibia
President of ALAT (Latin American Association of Thorax)
Dr. Tomás Chivato
Dean of the Faculty of Medicine, Universidad CEU San Pablo (Spain)
Dr. Kevin O’Brien
Senior Medical Director Therapeutic Science and Strategy Unit in IQVIA
Mr. Juan Carlos López Caro
President of GRAP – Grupo Respiratorio de Atención Primaria (Primary Care Respiratory Group) (Spain)
Dr. Esther Barreiro
Pulmonologist and Coordinator of the Chronic Respiratory Diseases Research Group, Hospital del Mar-IMIMIM (Spain).
Juan Carrión
President of FEDER-Spanish Federation of Rare Diseases and founding member of ALIBER-Alianza Iberoamericana de Enfermedades Raras.
Dr. Anahí Yáñez
Medical Director of InaER Investigación en Alergia y Enfermedades Respiratorias (Argentina).
Silvia Caño Alcaina
Senior Project Director for Scientific and Clinical Innovations AstraZeneca (Spain)
Dr. Amelia Martin Uranga
Associate Director of Clinical and Translational Research at Farmaindustria (Spain).
Carlos Jaime
Managing Director France & Iberia Ascom (Spain-Portugal)
Dr. Nicole Hass
Spokesperson and technical advisor for APEPOC – COPD Patients Association (Spain).
Dr. Beatriz Martínez-Delgado
Scientific researcher IIER-Instituto de Investigación de Enfermedades Raras (Spain).
Dimitris Kontopidis
New president-elect of ELF – European Lung Foundation
Dr. Joan Soriano
Epidemiologist, Pneumology Department, Hospital La Princesa (Spain).
Dr. Jose Roberto Jardim
Pneumologist at the Federal University of Sao Paulo (Brazil).
Jennifer MacDonald
Lovexair Foundation Ambassador and Alpha-1 patient (Mexico)
Sabrina Brignardello
Global Head of Recruitment Department of Un ensayo para mí (Argentina)
Dina Grajales
President of Fundación Ayúdanos a Respirar (Colombia) and patient with PH.
Andoni Lorenzo Garmendia
President of the FEP-Spanish Patients’ Forum (Spain)
Dr. Maria Molina
Scientific Director of the Respiratory Diseases Area of CIBER (Centro de Investigación Biomédica en Red).
Dr. Justino Regalado
Medical Director of INER (National Institute of Respiratory Diseases).
Dayana Lago
Psychologist and Cystic Fibrosis Patient
Dr. Susana Baldini
Medical Director of CAEME – Argentine Chamber of Medicinal Specialties
Prof. Adrián LLerena MD PhD
Director INUBE Instituto Universitario de Investigación Biosanitaria de Extremadura (Extremadura University Institute for Biosanitary Research)
Bernard Gaspar
President of the Spanish Association of People Affected by Lung Cancer
Driven by
