We unite our voices on World Rare Disease Day
February 28 is World Day for Rare or Infrequent Diseases. From Lovexair we unite and raise our voice throughout that month for the more than 300 million people affected by this condition
This year, we came together to give a voice to the fathers and mothers of children with a Weird illness. On Monday, February 27, we held an Instagram Live "From caregiver to caregiver" where Mónica - mother of Joaquín, a child with cystic fibrosis -, Maria – mother of Salome, girl with pulmonary hypertension – Meri and Joan - parents of Nina, a girl with 1-antitrypsin deficiency – They told their experience when receiving the diagnosis and how they face their day to day life as a family. The event was hosted by Migdalia Denis, founder of Latin Health Leaders (LHL).
If you want to see it again, or you couldn't join live, here you can access the full video.
Watch the testimony of Arran Strong and Shane Fitch
Learn the life story of Arran Strong, professional surfer with #alpha1 and #HappyAir Ambassador, and his mom Shane Fitch. Arran was diagnosed with alpha-1 antitrypsin deficiency at birth. Today, at 23 years old, he is a professional surfer and the father of a beautiful child. He knows the testimony of Shane Fitch, his mother, where she shares her story and experience as a caregiver.
Let's continue working together to give a voice to the more than 300 million people affected by a Rare or Uncommon Disease and raise awareness about this condition!
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