Digital Health, Ers Congress And Global Respiratory Summit 2019
Key points at the ELF/ERS Patient Networking Day and our breakout sessions at the GAAPP Global Respiratory Summit 2019, Madrid, focused on how we can contribute
Today, there is a growing interest on the part of patients or health professionals as well as interest groups in using technology.
We are aware that being part of the digital transformation means that we all have an active role to benefit people affected by rare or chronic respiratory diseases.
Digital Health: ERS/ELF and GAAPP Summits
Key points at the ELF/ERS Patient Networking Day and in our breakout sessions at the GAAPP Global Respiratory Summit 2019, Madrid, focused on how we can bring these resources to patients in their own care plans; including physiotherapy, more active lifestyles and offering social support effectively to alleviate related problems such as isolation or anxiety.
Helping people learn more about managing their disease with new devices or apps, while at the same time engaging them in sharing their data or personal information for research purposes via digital networks is on the agenda today.
The challenges
However, not all participants who are individual or patient movement leaders can see how they might integrate these resources into their culture, their current organizational structures, or include them in the focus of their projects.
The exception is when people have grasped this vision and its future value, to achieve the goals that have been part of our main challenges for many years: improving people's quality of life and access to comprehensive care or new therapies and treatments. .
The most advanced organizations need to work closely together, as we are all at different stages of development on our way. We are all on a path of learning and capacity building, adjusting to this new environment, sharing resources or adopting similar plans instead of working in a fragmented way. The objective is to acquire economies of scale and critical mass for R&D.
First of all we need to understand how to collaborate, for example:
have a budget
Establish our time investment in capacity building
Determine what digital assets or data stream we should consider and how to achieve swift adoption in our communities.
The difficulties of air quality around the world perfectly demonstrate the importance of citizen participation, since the delivery or capture of data through social networks can change the way we can provide or adapt health care or services. advice, according to the events that arise, due to exposure to environmental contamination.
The key is being able to work together within a transparent and legally compliant framework that is well managed and supported with good governance and advice.
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