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The Alpha 1 Association Brings Together Patients And Families Of Patients With Aat Deficiency

The Alfa 1 Association held a meeting in Madrid aimed at patients and relatives of patients in order to resolve doubts and queries about AAT Deficiency (protein that is produced in e

 

 

 

During the meeting, Dr. Teresa Martínez, Pulmonologist at the XII de Octubre University Hospital in Madrid and member of the REDAAT Advisory Committee, and Dr. Carmen Díaz, Head of the Pediatric Hepatology Service at the La Paz University Hospital in Madrid, resolved the concerns and the lack of information that many patients suffer due to the lack of knowledge that exists about this disease.

 

Throughout this relaxed day, attendees had the opportunity to learn about the progress being made on this pathology, as well as the launch of a second drug by another laboratory. In turn, during the meeting, the attendees gave their opinion on the possibility of carrying out the treatment in their respective homes, an option that everyone valued satisfactorily.

 

On the other hand, Dr. María Teresa Martínez pointed out the importance of forming reference centers, since thanks to these centers, pulmonologists and patients could find answers to many of the doubts that patients have about treatment to deal with related diseases. to this deficiency, since it is a disease whose diagnosis takes 7 years on average.