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Inauguration of World Bronchiectasis Day

World Bronchiectasis Day, which will be celebrated on July 1, 2022, aims to increase global awareness of this condition and help people through education.

 

 

Lung health organizations around the world partner to kick off World Bronchiectasis Day

Leading patient organizations, scientific and professional societies join forces to raise awareness about bronchiectasis and its impact on the health of people around the world.

Respiratory health organizations from Europe, the United States, Australia and Asia come together to announce the declaration of World Bronchiectasis Day on July 1, 2022, to raise awareness of bronchiectasis and the increase in cases in many countries.

With the launch of #WorldBronchiectasisDay #WorldBronchiectasisDay we are committed to addressing the critical unmet needs of #bronchiectasis patient communities.”

Ruth Tal-Singer, PhD, President and Chief Scientific Officer of the COPD Foundation. 

Bronchiectasis is a lung disease that affects hundreds of thousands of people around the world. It is characterized by dilation of the airways or scarring so that the airways are unable to clear mucus properly, resulting in recurrent lung infections. Bronchiectasis creates a significant burden for patients and their families. It can lead to an accelerated loss of lung function resulting in long-term disability and premature death. The disease can occur at any age, although most people are diagnosed in adulthood. Although there is currently no cure, early detection and treatment of bronchiectasis can improve quality of life and promote longevity for those affected.

Although bronchiectasis is often considered a rare disease, its prevalence is increasing worldwide.

With the launch of World Bronchiectasis Day we are committed to addressing the critical unmet needs of #bronchiectasis patient communities.”

Ruth Tal-Singer, PhD, president and chief scientific officer of the COPD Foundation. #MedTwitter #lungs

World Bronchiectasis Day is promoted and organized by an international committee co-chaired by Tim Aksamit, MD, Medical Director, Bronchiectasis and NTM 360 at the COPD Foundation, and the Professor James Chalmers, President of EMBARC and Chair of Respiratory Research at the British Lung Foundation, University of Dundee. Representatives of global patient organizations and professional societies are also part of this committee.

The first organizations to join World Bronchiectasis Day are:

• • COPD Foundation and its Bronchiectasis and NTM Research Registry
  • European Multicenter Bronchiectasis Audit and Research Collaboration (EMBARC)
  • American Thoracic Society (ATS)
  • Lung Foundation Australia (LFA)
  • The Japanese Respiratory Society (JRS)
  • American Lung Association
  • European Lung Foundation (ELF)

• NTM Info and Research (NTMir)

 

 

"Bronchiectasis has been a neglected disease and a lack of awareness causes many patients difficulties and distress," said Professor James Chalmers. “We have made great strides in the last 10 years, but there is much more to do in research and awareness of the condition. We are supporting World Bronchiectasis Day as part of our ongoing engagement with global partners to address this neglected disease."

Lynn Schnapp, MD, President of the American Thoracic Society, added: “Currently, in approximately 40% of cases, the cause of bronchiectasis is unknown. That is too much. Our patients deserve better. By partnering with other global societies, our intent is to broaden awareness of this disease to improve the lives of patients around the world."

“We are encouraged to work with other leading global lung health organizations as part of World Bronchiectasis Day to raise awareness of bronchiectasis around the world,” said Associate Professor Lucy Morgan, Chair of the Lung Board of Directors. Foundation Australia and Chair of the Australian Bronchiectasis Registry. “We are also committed to better understanding the impact of bronchiectasis in adults and children in Australia as we strive to improve their quality of life and equitable access to evidence-based therapies,” she added.

To learn more and support World Bronchiectasis Day, visit worldbronchiectasisday.org

 

You can also see the presentation of the Dr. Esther Barreiro at the 3rd Ibero-American Summit of Respiratory Patients 2021

Video:  Bronchiectasis: Diagnosis, care and rehabilitation | Dr. Esther Barreiro 

 

About World Bronchiectasis Day

World Bronchiectasis Day, July 1, 2022, aims to raise global awareness of bronchiectasis and help people with the disease and others yet to be diagnosed through education, advocacy and conversation. focused on reducing the burden of bronchiectasis for patients and their families worldwide. More information at worldbronchietasisday.org