What is it like to live with a Rare or Infrequent Disease (EPOF)?
February 28 is World EPOF Day. From the Lovexair Foundation we join the #RareDiseaseDay campaign to raise awareness about these low prevalence conditions.
In the month of awareness of Rare or Infrequent Diseases, we unite our voices to give visibility to the 300 million people in the world affected by COPD. We join the #RareDiseaseDay campaign from our social networks where we spread figures and information related to these diseases that affect 5% of the world population.
What are EPOFs?
Rare, Minority or Orphan Diseases are those pathologies that affect less than 5 out of every 10.000 inhabitants. 70% of COPD begin in childhood. 72% are genetic others are the result of infections (bacterial or viral), allergies and environmental causes or are rare cancers.
Learn more about Rare or Infrequent Diseases
Watch the video of these #StoriesThatInspire!
Watch the Instagram Live video we made with the participation of our ambassador, Arran Strong, and 3 special guests: Martina (@alfa1argentina_), Diego (@fiquires) and Dary (@fundacionayudanosarespirar), young people who live with a rare condition and shared with us their testimony of overcoming. You can see it here
Who participated
- Lovexair Foundation
- FIQUIRES (Colombian Foundation for Cystic Fibrosis and Other Respiratory Diseases)
- Help us Breathe Foundation
- Alfa1 Argentina Foundation
- Arran Strong, Ambassador HappyAir.
Do not miss it!
For any questions or queries about the EPOF and respiratory health, you can write to us at Cuentanos@lovexair.com or register on the platform. https://happyair.org/ for a free online consultation.
Read Related Article:
