We are increasingly exposed to the impact of climate change, air quality degradation and emerging diseases. The number of people affected by respiratory conditions is growing significantly, yet the resources to meet their care needs continue to decline.
In this sense, research plays a fundamental role in connecting the actors in the health system, providing quality, scientifically based information for decision-making, and promoting new knowledge for a healthy, prosperous and more equitable global society.
“The 5th Ibero-American Summit analyzes the current challenges facing research and the significant absence of investment for respiratory diseases.”
Shane Fitch, President of the Lovexair Foundation
Program
Day 1 | Tuesday December 5
Opening session
15:30 p.m. – 16:00 p.m. (CET)
The map of respiratory health research Where are we and where are we going?
- Shane Fitch , Lovexair Foundation
- Dr. Francisco Garcia Rio, president of SEPAR (Spanish Society of Pulmonology and Thoracic Surgery)
- Dr. Francisco Arancibia, president of ALAT (Latin American Thorax Association)
Discussion table 1
4:00 pm – 5:00 pm (CET)
Research from the academic-scientific perspective
- Alfonso Aguaron, policy officer at Lung Cancer Europe [Moderator]
- Dr. Maria Molina , scientific director of the Respiratory Diseases Area of CIBERES (Spain)
- Dr. Thomas Chivato , dean of the Faculty of Medicine of the CEU San Pablo University (Spain)
- Dr. Justino Regalado , president of INER- National Institute of Respiratory Diseases (Mexico)
- Kevin O'Brien , Senior Medical Director of IQVIA (USA)
Discussion table 2
17:00 p.m. – 18:00 p.m. (CET)
Research from the perspective healthcare
- Dayana Lago, psychologist and patient with Cystic Fibrosis [Moderator]
- Dr. Juan Carlos Lopez, president of GRAP- Primary Care Respiratory Group (Spain)
- Dr. Joan Soriano, epidemiologist at the Pulmonology service at Hospital La Princesa (Spain)
- Dr. Anahí Yáñez, medical director of InaER Research in Allergy and Respiratory Diseases (Argentina)
- Dr. Esther Barreiro, pulmonologist and researcher Hospital del Mar-IMIM (Spain)
Discussion table 3
18:00 p.m. – 19:00 p.m. (CET)
Research from the industry perspective
- Dr. Nicole Hass , APEPOC spokesperson and technical advisor [Moderator]
- Dr. Amelia Martin Uranga , director of the Department. Clinical and translational research at Farmaindustria (Spain)
- Dr. Susana Baldini , medical director of CAEME – Argentine Chamber of Medicinal Specialties (Argentina)
- Silvia Caño Alcaina , Senior Project Director for Scientific and Clinical Innovations AstraZeneca (Spain)
Day 2 | Wednesday, December 6
Discussion table 4
15:00 p.m. – 16:00 p.m. (CET)
Future research
- Dina Grajales, Help Us Breathe Foundation (Colombia) [Moderator]
- Dr. Beatriz Martínez, scientific researcher IIER-Rare Diseases Research Institute (Spain)
- Prof. Adrian LLerena MD PhD, Director INUBE University Institute of Biosanitary Research of Extremadura (Spain)
- Carlos Jaime, Managing Director France & Iberia Ascom (Spain-Portugal)
Discussion table 5
16:00 p.m. – 17:00 p.m. (CET)
Research from the perspective of patients and relatives
- Andoni Lorenzo, president of the FEP-Spanish Patients Forum [Moderator]
- Bernard Gaspar, president of the Spanish Association of Lung Cancer Patients (AEACaP) (Spain)
- Juan Carrion, president of the Spanish Federation of Rare Diseases (FEDER)
and founding member of the Ibero-American Alliance for Rare Diseases (ALIBER) - Sabrina Brignardello Global Head of Recruitment Department of An essay for me (Argentina)
- Jennifer McDonald ambassador of the Lovexair Foundation and patient of Alpha-1 (Mexico)
Workshop
17:00 p.m. – 18:00 p.m. (CET)
Redefining the map of priorities in respiratory health research in Latin America
- Online and live workshop with attendees and participants to address various topics and agree on priorities from the point of view of the different actors. This activity will be moderated by a facilitator who will apply interactive dynamics.
- Participation is open to all people interested in contributing their vision of how to improve and promote research in respiratory health.
Closing session
18:00 p.m. – 18:30 p.m. (CET)
Keys to promote research
- Dimitris Kontopidis, CF patient and new elected president of ELF – European Lung Foundation
- Jose Roberto Jardim, professor of pulmonology at the Federal University of Sao Paulo (Brazil)
- Shane Fitch president of the Lovexair Foundation
The event has simultaneous translation (Spanish-Portuguese)
Dr. Francisco Garcia
President of SEPAR (Spanish Society of Pulmonology and Thoracic Surgery)
Dr. Francisco Arancibia
President of ALAT (Latin American Thorax Association)
Dr. Thomas Chivato
Dean of the Faculty of Medicine of the CEU San Pablo University (Spain)
Dr. Kevin O'Brien
Senior Medical Director Therapeutic Science and Strategy Unit at IQVIA
Mr. Juan Carlos López Caro
President of GRAP – Primary Care Respiratory Group (Spain)
Dr. Esther Barreiro
Pulmonologist and Coordinator of the Chronic Respiratory Diseases Research Group, Hospital del Mar-IMIM (Spain)
Juan Carrion
President of FEDER-Spanish Federation of Rare Diseases and founding member of ALIBER-Ibero-American Alliance for Rare Diseases
Dr. Anahí Yáñez
Medical Director of InaER Research in Allergy and Respiratory Diseases (Argentina)
Silvia Caño Alcaina
Senior Project Director for Scientific and Clinical Innovations AstraZeneca (Spain)
Dr. Amelia Martin Uranga
Associate director of clinical and translational research at Farmaindustria (Spain)
Carlos Jaime
Managing Director France & Iberia Ascom (Spain-Portugal)
Dr. Nicole Hass
Spokesperson and technical advisor for APEPOC – Association of Patients with COPD (Spain)
Dr. Beatriz Martínez-Delgado
Scientific researcher IIER-Rare Diseases Research Institute (Spain).
Dimitris Kontopidis
New elected president of ELF – European Lung Foundation
Dr. Joan Soriano
Epidemiologist of the Pulmonology service of Hospital La Princesa (Spain)
Dr. Jose Roberto Jardim
Pulmonologist at the Federal University of Sao Paulo (Brazil)
Jennifer MacDonald
Ambassador of the Lovexair Foundation and patient of Alpha-1 (Mexico)
Sabrina Brignardello
Global Head of Recruitment Department of An essay for me (Argentina)
Dinah Grajales
President of Fundación Ayúdanos a Respirar (Colombia) and patient with HP
Andoni Lorenzo Garmendia
President of the FEP-Spanish Patients Forum (Spain)
Dr. María Molina
Scientific Director of the Respiratory Diseases Area of the CIBER (Network Biomedical Research Center)
Dr. Justino Regalado
Medical director of the INER (National Institute of Respiratory Diseases)
Dayana Lake
Psychologist and patient with Cystic Fibrosis
Dr. Susana Baldini
Medical Director of CAEME – Argentine Chamber of Medicinal Specialties
Prof. Adrian LLerena MD PhD
Director INUBE University Institute of Biosanitary Research of Extremadura
Bernard Gaspar
President of the Spanish Association of Lung Cancer Patients
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